Twenty-three-year-old Jaime Jenkins and his partner, Jakob Lang, Sydney, Australia, were expecting their first baby, but in the 12th week of pregnancy, ultrasound showed that something was not right. anguishing weeks passed, during which young, hopeful parents planned for their shared future, but at the same time did not know what was wrong with her unborn daughter.

Just a couple of weeks before birth, doctors had to face Jaime with the cruel truth: that her daughter had not grown any lung tissue and is advised that the termination of pregnancy. “I could feel her kicks and had already named, there was no way he could not give him a chance in life,” said the young mother.

When Helena came into the world, new parents were preparing to say goodbye to her. Doctors saw no chance of survival for her. But despite everything, she became stronger and stronger, surprising his family and, even more, their doctors. After six weeks, parents finally learned the diagnosis of her daughter :. Helena suffered from a rare form of dwarfism

Overall, Helena eluded death three times, has had to endure numerous operations, and spent the first three months of his life in the hospital. During this time, his parents learned to properly look after her because her special condition requires a lot of time, attention and knowledge.

Meanwhile, Helena’s parents have learned that both have the same rare gene dwarfism – although both are nearly six feet tall. They affectionately call their sweet daughter “Thumbelina.” They have not decided whether they will add to your family, because there is a one in three chance of having another child with the same disorder.

She often dress in fairy dresses and princess in order to bring a ray of light in the life of Helena and counter the many tests that must endure. The theme seems to flourish with little attention because she smiles in every picture. She even has a first modeling assignment officer, which has been given tailored clothing. It has also recently celebrated its first birthday.

Helena parents share their story and the difficulties facing it on your own Facebook page. “Helena has surprised us in many ways, she’s a real little miracle and I hope our story helps other parents facing the same situation,” Jaime said.

Helena has to go to the doctor for checkups twice a month, but the moment in the middle, his parents give their best to make your life enjoyable and memorable. Hopefully, they will continue to celebrate every special milestone achieved. And who knows? With his infectious smile, maybe she will become a famous model someday.

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